*GUEST POST in honor of World Sickle Cell Day* Sickle Cell Warrior, Red, Talks about having SC


Today, In honor of World Sickle Cell Day, We have a guest post!!!

Fanpage homie and resident Sickle Cell Warrior, Red, has written a post about what Sickle Cell is and what it is like from his point of view. 

We all know that our Tionne has Sickle Cell, but MILLIONS of others also are affected. It is SO important that we do all that we can to raise funds to support those with the disease and find a cure! Anything that you can do to raise money or awareness is a huge help. Everyone with this disease deserves to lead a full life without limitations!!! And that starts with education, awareness and MONEY! Go to CHIDEO to donate to T's charity that benefits Sickle Cell (and if you've done it...do it again!!). You can also google charities in your own community  and find ways to help right where you are. 


Here is Red's  post: (and don't forget to check out his video at the end! Love you, Red!! The fanpage stands behind you and every other Sickle Cell Warrior!!!)


Hey T-Boz Fan Page TLC Army and Cyber TLC World!


So in honor of Sickle Cell Awareness Day, I thought I share just a little about what being a sickle cell patient is and what they might do at the hospital to help relieve the symptoms since we still have no cure! Lets find a cure my fellow TLC Army! Here is just a little history of what Sickle Cell Anemia is.


What Happens With Sickle-Shaped Cells

Sickle cell anemia occurs because an abnormal form of hemoglobin (HbS) is produced. HbS molecules tend to clump together, making red blood cells sticky, stiff, and more fragile, and causing them to form into a curved, sickle shape.


RBCs containing HbS can go back and forth between being shaped normally and being sickle shaped until they eventually become sickle shaped permanently. Instead of moving through the bloodstream easily, these sickle cells can clog blood vessels and deprive the body's tissues and organs of the oxygen they need to stay healthy.


Unlike normal RBCs that last about 4 months in the bloodstream, fragile sickle cells break down after only about 10 to 20 days, which usually causes anemia. Anemia is what happens when the body's number of red blood cells (or amount of hemoglobin) falls below normal. People who are anemic often feel weak, tire more easily, and may appear "run down."


People with sickle cell anemia can also experience complications from impaired blood circulation and infection-fighting problems. These include a higher risk of certain infections and stroke as well as a condition called acute chest syndrome, which is caused by inflammation, infection, or occlusions (blockages) of blood vessels in the lungs by sickled cells.

Sickle cell anemia is not contagious, so you can't catch it from someone else or pass it to another person like a cold or an infection. People with sickle cell anemia have inherited two sickle cell genes, one from each parent. A child who has inherited the sickle cell gene from only one parent will not develop the disease, but will have sickle cell trait. People who have sickle cell trait don't have sickle cell anemia and usually don't have any signs of the disorder, but they can pass the sickle cell gene on to their own children.


People with sickle cell anemia also may have bouts of severe pain in the chest, stomach, arms, legs, or other parts of the body. This is caused by sickle cells blocking blood flow through the small blood vessels in those areas. Feeling tired and having trouble fighting infections are also common among teens with sickle cell anemia, and they may grow more slowly and reach puberty later than other teens.


Periods of pain are commonly referred to as pain crises, which vary in their severity, how often they happen, and how long they last. Whereas one person may have only one sickle cell pain crisis a year, another may experience them more often. Crises can be brief or last hours, days, or even weeks. Sometimes pain can be severe enough to require treatment in the hospital. Symptoms can develop in any body organ or tissue and include aching arms, legs, hips, and shoulders.


When people with sickle cell disease get acute chest syndrome, they may have severe chest and abdominal pain, fever, cough, and trouble breathing! They will usually treat your sickle cell crisis with lots of IV fluids and pain medication and if necessary they may need to provide you with a blood transfusion. I personally have had 7 blood transfusions and at the moment some of my Doctors have discussed having me under go a bone morrow transplant but I am going to leave that in God's Hands because like my Mom and T-Boz says God has the final SAY!


I know what it's like to have Doctors treat you like drug addicts and have nurses look at you funny and it's because they are ignorant as hell! I have waited way too long to go to the hospital just so I don't have to deal with the stares and the dirty looks and some of these rude ass mutha....doctors! lol On a serious note please to all my family who has sickle cell no matter how they treat you at the hospital please don't wait to receive help! Go to the hospital and you make them give you the care that you deserve and need! I would like to give a special shout out to our girl Tionne T-Boz Watkins for being a Champion to me and to all patients with this horrible disease. T-Boz is the lead singer of the BIGGEST SELLING GIRL GROUP of all time an if she can accomplish her dreams and overcome all she has been through then so can the rest of us!


Love You All!


P.S. If you have sickle cell and you need someone to talk to or just need words of encouragement you can hit me on my kik 24/7-koolsexikrazy


Toya R.1 Comment